Jump David Jump

(A few days late)

I know, I know, you are ready for a “check in!” So, here we go...

In September I went down to MD Anderson (Houston, TX) and received the surgery of my life! The petite doctor who was the main surgeon had to get up on a riser to perform it. I talked to Lori over the phone during the awake portion of the surgery, and encouraged the doctor to keep going to get it all! She did a happy dance about removing 95% of the tumor!

After recovering from surgery, I went back home for a short time to see my girls, and then returned to Houston for six weeks of radiation. Then at home in Michigan I was going to take a six month plan for chemo. This was going to be my year and I would make it through!

The cancer had different plans...

The chemo was developed in the 1970s and I was told it was pretty bad. I'll say the first month was didn't feel so bad, but the second round, beginning third month was simply the worst. I couldn’t imagine what six months would be like.

Because of COVID-19, I had a virtual meeting with my doctor at Spectrum Health after my most recent MRI on April 2nd. My doctor came on and said “I’ve got some bad news.” She told me that the tumor is still growing in two places, toward the middle and toward the back of my brain. I also am growing a second tumor, which shows bleeding. My brain is swollen, causing frequent dizziness and affecting my speech, reading, and writing abilities.

The doctor said it is pointless to continue this chemo.

My doctor here has made a next step recommendation of a drug called Avastin, which would be given through IV every 2-3 weeks, but we're waiting to hear from MD Anderson tomorrow too.

THANK YOU to my wife, Lori, for helping me write this post, and to my mom, Donna, for staying with us and helping us out throughout this entire quarantine.

Please pray for me... THIS STORY ISN'T OVER YET!

#IAMSTILLALIVE

Back in the, Back in the, Back in the Grands Rapids!

Well, here it is! A full month away from when I received my second (and last) round of radiation. After the full radiation session, you can see how unfortunately tiny the small changes all. The top row is the most recent MRI images ("A") and the bottom row of images is from October 26th ("B").

After 5 weeks of radiation, there have been a few small changes. My favorite image is the second one due to the dimensions of how these look. On the A images, it's recorded as:  A - 19 mm and B - 17.2mm. On the B images, it is recorded as:  A - 31.8 mm and B - 24.2 mm. Somethings movin'! 

Let's hope these things stay where they are OR shrink! And remember, LET'S ALL STAY ALIVE, so let's go something for someone who needs it, NO MATTER HOW SMALL IT IS!

Two Months Down...

TIME TO BATTLE UP!

It's been a great ten years!

I've managed to stand up to this tumor for a full decade and outlive my prognosis while livin', lovin', traveling the world, finding the love of my life, sharing my memoir, having babies, etc..., but the time has finally come to dig back into my skull and confront this sentient son-of-a-bitch once again.

As you can see in the edited image below, the image on the far left was captured May 13th right after I finished a full year of chemo, the center image was captured July 22nd with some significant growth, and the image on the far right was captured August 27th with even MORE growth. It appears we've made it angry. 

My wife, parents, and I went down to MD Anderson in Houston, Texas this past week where we met with multiple doctors who all agree it's time to get back in there and see what's going on. They want to do another stereotactical biopsy (which they did ten years ago), but this time use their advancements in immunotherapy and genetic testing which have both greatly increased. By getting a fresh sample of this tumor they will get a much better idea of determining what this tumor is specifically made of and how they can attack it.

HOWEVER, when they do this biopsy they will be aggressively looking for opportunities to resect as much of this tumor as they can. This means the recovery time on this surgery could be between one week (biopsy) to four-plus weeks (brain resection). And again, there is a high likelihood of adding radiation and chemo directly after this surgery as well. Who knows how long the recovery of this will be, but you can DEFINITELY help us during this time!

My lovely wife Lori will be at home with our girls and will be taking care of them, so it would be amazing if you could help out and contribute to this meal train! We're already got a great list being set up, but feel free to contribute however you want. I'll keep you updated as things move on, but until then, remember...

YOU ARE STILL ALIVE!

Good News / Bad News 😬

This has been ONE crazy month. So I've been waiting to release this news until all of my high school reunions, Duarte events, Bent Not Broken Gatherings were finished and now... here we are.

Cutting to the point, my last MRI was NOT good. Over the year of taking chemo, we saw that the tumor had actually started shrinking, which was great! But three months after my final pill, we went back in to get an update and saw that my tumor IS PISSED!  The image on the right was from the MRI I took just after finishing chemo and the one on the left is from three months later. Pardon the language, but this is the text I sent to Lori after seeing this.

And to add insult to injury, 5 minutes before my Nashville Bent Not Broken gathering on August 3 - 4 started, I fell to the floor and had another grand mal seizure. The bummer was that no one else was in the lodge with me, so there was no one to help me out. Just me, on the floor, writhing around, then waking up unable to stand or speak, stumbling around like a 2 am drunkard as our cancer survivors start walking through the door. Of course, they were very concerned, and I eventually came back to reality. But what a kick in the face from this damn tumor. 🙄

GOOD NEWS TIME!

I will be going down to MD Anderson in Houston, Texas next week, where their doctors will take a look at it. And based on the results and their opinions, we'll most likely do another biopsy (dig into my brain and pull out a piece of the tumor to analyze it). I think we've all been hearing about the progression in cancer treatment, and especially brain cancer, so we're looking for a forward-thinking solution to deal with whatever my tumor has turned into. 

I'll gladly be accepting your prayers! If I have any friends in Houston, give me a shout! 

Love + Peace, ya'll! 

"THE CASTLE!!!"

...said Etta EVERY SINGLE SECOND since our girls learned they were going to Disney World!

We were recently blessed by Seth Martin and Chris Equizi as they helped us gather our tickets for our family's first trip to Disney World! And when I say "blessed," I truly mean it. They were FAR too generous with their money, which allowed us to have the time of our lives!

DANCE PARTY DISNEY!!!

Thank you for inviting us, Mike and Lindsay DiCuirci, and our families to celebrate this summer with you at Disney World!

Love you guys!

 

 

I love my cancer

Unfortunately, I really don’t have that much to say today. In fact, this day has snuck up on me. I’m sure the majority of you have heard all of my stories a thousand times, but I think it's time for me to start living out a story that has been actively brewing in my mind for a few years now. And there is no easy way to get this off my chest, so I'll just say it out loud:

I love my cancer. I am at peace with my cancer. 

I assume those words mean something similar to an athlete who says he “loves” the sweat pouring from his body during his muscle-destroying training. Or a solo cellist who “loves” his rigorous practice schedule. Or a mother who “loves” watching her disabled child develop, despite the overwhelming struggles it brings every day. It's a strange kinda love. A love you never really considered, but a love that snuck up on you, that has attached itself to you, that won’t let you go.

I feel strange saying it, but in my life, it’s true: I love my cancer. I am at peace with my cancer. I'm tired of trying to "battle it," to "outthink it," to "destroy it." I'm fine to walk with it for a bit longer and if it chooses to stay or to leave, I'll accept that. As the scripture tells us: "Can anyone of you by worrying add a single hour to your life?" Pretty sure the rhetorical answer to that question is 'no.' 

I feel as though I'm being called, more and more strongly each day, to do something unique. It's a similar feeling as to when I had to write my own book, Thank You Kung Fu, or start up my nonprofit, Bent Not Broken. But in order to reach that next step, I have to have the right heart. And as days go by, I realize the only thing I can do that truly means anything is to embrace love and peace.

So as I move forward, today, tomorrow, maybe even another day if the Lord sees fit, all I ask for are more moments to show and receive true love and true peace. I'm sorry, I'm wearing these words thin on reporting about a half-witted thought. So I'll just end with this:

Thank you for the love and peace you've offered me over the last ten years. You have no idea how much you have changed me. I hope I get to see you again soon. I’ve got a giant bear hug I've been planning to give to you.

Love and Peace, my friends.